Arnold Chiari Malformation - The Arnold Chiari Malformation is a major issue concerning Spina Bifida / Hydrocephalus.
The International Federation for Spina Bifida and Hydrocephalus
SBH Queensland
Spina Bifida Foundation of Victoria
Spina Bifida & Hydrocephalus Association of Western Australia
Association for Spina Bifida and Hydrocephalus - England, Wales & Northern Ireland
Spina Bifida Association of America
Spina Bifida & Hydrocephalus Association of Ontario
NDS - National Disability Services (formerly ACROD) - Promoting the development of quality services and life opportunities for Australians with disabilities.
Carers Australia - Practical Help and Support for all carers.
Hydrocephalus Foundation Inc - An American site dedicated to Hydrocephalus with good links and resources.
Northcott
Spina Bifida in America - This site has a wealth of information on the subject.