Privacy Policy

The Spina Bifida & Hydrocephalus Association values the privacy of its members and supporters.

We only collect the personal information that you may volunteer in order to provide the best quality services and information. We do not collect information about you from other sources, such as public records, government bodies or private organisations.

We may collect and use personal data for the additional purpose of fundraising.

All our employees and volunteers, who may need access associated with the processing of your personal information, are obliged to respect the confidentiality of this information and they are legally bound by our Human Resources Policies and Procedures.

We ensure that your personal information will not be disclosed to State institutions and authorities except if required by law or other regulation.

Our privacy policy is in accordance with the National Privacy Principles. There are no global or regional regulatory or self-regulatory schemes applicable to our organisation. In order to demonstrate that our privacy policy accords with the above privacy guidelines, we are voluntarily committed to a Self Assessment procedure and subject to a Government Agency supervision.

Any individual has the right to request a copy of their information held by the Association as required by the National Privacy Principles.