Membership
Current
Membership Information &
Form
Outreach
Services
Information
Expanded
Subsidy Scheme Information &
Form
Life
Membership and Meritorious Service
Award
Information
2007-2008
We would like to encourage you to begin or
renew your membership for this financial
year.
Not only does paid membership help the Association,
but there are many benefits for the member, some of which
you may not be aware of.
Download
Membership Form
(PDF File 31KB)
Benefits for All
Financial Members:
- Spin Magazine
- Voting Rights at the
Annual General Meeting and at any Special Meetings
- Family Events
- Guest Speaker for community
events
- Information
Resources
Benefits specifically for our
Spina Bifida/Hydrocephalus Members:
- Expanded Subsidy Scheme - see
below
- Outreach Nursing Service (for
people over 16) - see below
- Access to Peer Support Program
- Social Functions
- Camps
- Carers Meetings
- Counselling
- Advocacy
- Country Visits
- Workshops
- Employment
Assistance
The Association is always looking
at new ways to benefit all of its members and our
services are under constant evaluation. We encourage all
our members to communicate with staff of any ideas or
concerns. With your help we look forward to another year
of growth.
Outreach
Services
The Outreach Service of the Spina Bifida and
Hydrocephalus Association is comprised of 2 Registered
General Nurses covering 5 days a week (9am-3pm), and a Member
Services Officer.
As a spina bifida/hydrocephalus member of the
Association, all these services are available. The
Nursing Outreach Service can support members in all
aspects of their health care needs. Some current areas in
which we can be of assistance include:
- Transition to Adult Services
- Attending appointments when meeting new
practitioners to provide personal support and medical
history support, orientation to the new environment
and protocols.
- Ongoing Medical
Follow-up - Attending appointments to provide
support and medical advocacy. Assisting in developing
a system to ensure appropriate follow up is met. We
can provide reminder calls and opportunities to
discuss pending appointments to achieve best outcomes
from those contacts with practitioners ie making list
of issues to discuss.
- Linking to Community Health
Services - We promote the very important role a GP
plays in the health management of our members and
offer our support to the GP and will liaise over
health issues.
- Referral to Community
Nursing Services and Counselling Services - As
required following assessment of needs.
- Health Screening - We
have a number of programmes that we coordinate to
assist members in accessing health screening services
and promoting good health ie PAP Smear Screening,
podiatry assessment, weight loss programme,
lymphoedema assessment. We are constantly exploring
new and appropriate ideas for workshops and ongoing
programmes.
- Accessing Medical
Supplies - We are available to assist in the sourcing and
purchase of medical supply needs which may be outside that
provided through the CAAS scheme or should the CAAS funds run
out
- General Consultation -
We are available to discuss any issues of
concern
Our service is dependent on you wishing to have us involved and maintaining
contact so as to make us aware of your needs. Time
constraints and demand for our service makes it difficult
to follow up routinely with all clients. Notification of
appointment dates need to be made as early as
possible.
Please Note: The Nursing Outreach
Service does not provide an "At Call" emergency service. If your
needs are urgent we recommend you contact your personal doctor or
your nearest hospital.
Expanded
Subsidy Scheme Information
To receive a subsidy, the claim MUST be for the benefit of a
current financial member of the Association. Also, the claim must relate to Spina
Bifida and/or Hydrocephalus.
If a subsidy is requested and membership has not been
paid the right is reserved to deduct membership from the
subsidy payment. 25% subsidy applies to the majority of items but
a 50% subsidy applies to certain items, like membership to
the Ileostomy/Colostomy Association.
To obtain more details
contact the Member Services Officer or Outreach Nurses.
Items not listed
can be submitted for consideration by the Association.
Download
Subsidy Form (PDF
File 53KB)
Life
Membership and Meritorious Service Award
The Board of the Association decided that there
are many people who have supported the Association over
the 40+ years since it was formed in 1965 and that there needs to
be a way in which these people are recognised and
thanked.
As a result, a special award has been decided
upon and it is to be called a Meritorious Services Award.
The ultimate recognition of
Honorary Life Membership will still to be awarded. People
who receive this award are very special people and
consequently there are only a few of them and their
contribution stands out from all others.
The Board believe that the
members of the Association should to be involved in
nominating people for these awards. Consequently, anyone
who would like to nominate someone for either Life
Membership or a Meritorious Services Award is invited to
contact us to receive a nomination form which must be completed prior
to being referred to the Board.
Nominations for these awards need to be in
writing and received by the Association before July 31 each year.
All nominations will be referred to the Board for the
final decision. All decisions made by the Board regarding
these awards are confidential.
As a guide, the following are seen
as the minimum that a person being nominated for an award
must satisfy. Remember that these awards are intended to
recognise the services and support of very special people.
Life Membership to people
who:
- have given or who are giving
exceptional service to the Association or to people
who have Spina Bifida and/or
Hydrocephalus
- must have provided or have been
providing this exceptional service for a period of not
less than 5 years
- must be or have been active
in the promotion of the Association's
objectives
- must not be a current
employee of the Association
Meritorious Services Award to
people who:
- have made or be making a
significant contribution to the work of the
Association,
- have been involved with the
Association for at least 5 years,
- are not a current employee of
the Association.
Please contact the Association if you would
like to discuss this or if you would like to
nominate someone for either of these awards.
Remember : The Board will make
the final decision and so it would be wise not to tell
the person who you are nominating. Besides it will spoil
the surprise!